Engaging service providers as researchers: promoting disability inclusion in research

Authors: Lillie Greiman*,
Topics: Disabilities, Field Methods, Social Geography
Keywords: CBPR, disability, inclusion, accessibility
Session Type: Virtual Paper
Day: 4/10/2021
Start / End Time: 11:10 AM / 12:25 PM
Room: Virtual 49
Presentation File: No File Uploaded

A core component of community based participatory research is the inclusion of community members as researchers throughout all stages of the project. This is particularly pertinent when conducting research with people with disabilities and the organizations that serve and support people with disabilities living in the community like Centers for Independent Living. As peer led organizations, Centers for Independent Living are excellent partners for engaging in community based research with people with disabilities and promoting the disability rights ethos of “nothing about us without us”. This paper provides an overview of the process of engaging service providers (i.e. center for independent living staff) as researchers to implement a community based intervention for people with disabilities living independently in the community. We explore best practices for building an effective research team as well as barriers to full inclusion such as accessibility of IRB requirements, navigating power dynamics, and balancing conflicting expectations.

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